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Struggling with severe ocular GVHD after transplant: What helps?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 20 7:31am | Replies (4)Comment receiving replies
@benzima
Gosh I am so sorry to hear about your challenges with GVHD. I don’t know where you live, but I can share that my husband was referred to Dr. Sandeep Jain at University of Illinois and ocular GVHD is his speciality. He believes in proactive management of this during the first two years after transplant, a window you are still in. He has helped my husband immensely! He has presented to transplant oncologists about his research and treatments. My husband’s transplant doctor at Northwestern Medicine in Chicago referred us to Dr. Jain. Here’s a link about him and how to contact his office.
https://hospital.uillinois.edu/find-a-doctor/sandeep-jain
I hope you can contact them to see if they can help you in any way.
Wishing you all the best.
Mary
Replies to "@benzima Gosh I am so sorry to hear about your challenges with GVHD. I don’t know..."
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@mary612 @benzima After seeing @mary612's post, I had just last week read the transcript of a presentation that Dr. Sandeep Jain had made regarding oGVHD. He has an oGVHD clinic at the University of Illinois, Chicago. Below is a link to the transcript. I hope it might provide some additional information that can help you.
https://www.nbmtlink.org/wp-content/uploads/2026/01/Transcript_nbmtLINK_2026-01-21_Lets_See_Whats-New_Regarding_Treatments_and_Proactive_Ocular_GVHDCare.pdf