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Anyone have Cluster headaches? What helps?

Headache & Migraine | Last Active: Aug 31 11:16am | Replies (98)

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Profile picture for brighton022 @brighton022

Have been having serious episodes of cluster headache since 2021.

The attack normally happens in the night a few hours after sleep or in the morning when I wake up. It's associated with a tearing and blocked nose.

The most excruciating pain that makes me act like child, pacing, throwing arms but nothing helps.

Feel like someone is living inside my head making a deep cut on the right side of my head. Moves from the top of the eye and stretches to the head and down to the neck. Had the worst experience of upto 3hours last night.

To be honest I dread going to bed now.

Have used Sumatriptan 50mg for 7days now and it has been helping. Was asked to not use it beyond 5days.

Met a neurologist yesterday and he gave me verapamil 40mg to be used along side prednisolone but the attack was beyond the usual and it extended to 3hours beyond the usual 30 to 1hour.

I am committing to go a journey with the Neurologist but I am also here to understand what this community can help with.

Thank you

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Replies to "Have been having serious episodes of cluster headache since 2021. The attack normally happens in the..."

Hi @brighton022, and welcome to Mayo Clinic Connect.

Feeling like someone is living inside your head, making a deep cut on the right side of your head, sounds awful. So is feeling like you dread going to bed.

I moved your post here so you could chase with others in this existing discussion if what helps when cluster headache:

- Anyone have Cluster headaches? What helps?https://connect.mayoclinic.org/comment/1624656/edit/

If you are replying by email, click on VIEW & REPLY so that you will be brought to the new discussion. I suggest reading through and jumping in where you feel comfortable.

I hope you and your new neurologist can identify a medication that works well for you.

Are you most interested in medication others are taking for cluster headache, or lifestyle adjustments?