← Return to Not stable after 18 months past last PRRT treatment

Discussion
sophiarose avatar

Not stable after 18 months past last PRRT treatment

Neuroendocrine Tumors (NETs) | Last Active: Jul 17 7:24am | Replies (5)
Comment receiving replies
Profile picture for sophiarose @sophiarose

@tomrennie
I just heard from my Dr he is receptive to doing another round of PRRT and some kind of Embolization
He isn’t sure if the pain I am having when I sit or bend is my live or the cancer on my rib cage
If it is my rib cage or can hopefully be zapped with radiation
Thank you for responding

Jump to this post

Replies to "@tomrennie I just heard from my Dr he is receptive to doing another round of PRRT..."
Turkey, Volunteer Mentor | @tomrennie | Jul 16 1:01pm

@sophiarose That's good news you agree?

VIEW AND REPLY
zacharycat | @zacharycat | Jul 17 7:24am

@sophiarose Interesting. During PRRT I had occasional back pain when getting up after sitting or kneeling. Usually worse later in the day. Doctors referred me to a physical therapy program that didn’t really fix the back issues but helped regain overall strength. The exercises I could easily do at home, but had to stop after the pancreatic surgery. Still have some pain and stiffness at the incision site and haven’t really resumed most exercises I was doing. (Many activities I can still do but no longer enjoy them as much).

The back pain was the only discomfort I had on PRRT and I would take it again over the effects I have had on Cabometyx (dizziness, fatigue, stomach and esophagus pain, gas, inability to eat many foods I used to like).

VIEW AND REPLY