Nannagross
I am so sorry, I am sitting here reading your post and it sounds something like what I have been through, in 2024, I started having another GI bleed, went to the emergency room, and was admitted, I am so thankful for the two physicians that were on duty that day. I have had several GI bleeds, all requiring hospitalizations. Becauseof my previous history, they decided to go the extra mile and ordered some extensive testing, I am so grateful for those two doctors.
What caught my attention with you was the fact that you were not informed about the findings before it got to this point.
With this last GI bleed and hospitalization, they sent a surgeon in to discuss the findings with me, she says, “oh! It's the same findings of a NET Tumor with metastasis, in your small intestine and mesentery that was seen back in 2019”, I look at her like she was from another planet, I told her, “no one informed me of any findings, rather I was told, “everything was fine.
I had to have massive surgery to remove quite a bit of my small intestine and mesentery, was in the ICU for two days short of a month due to complications from the surgery.
I am still besides myself because, the radiologist didn't point out the findings, (had he, I would have asked for further testing if. O one else would have, my doctor that has done numerous colonoscopies, endoscopies, biopsies, and surgeries on me over the years because of my GI history, told me everything was alright.
As a matter of fact, that doctor hasn't said anything to me since my diagnosis and subsequent surgery, and turned me over to another doctor in his practice.
Angry, disappointed, all of it!
I started Lanreotide injections every 28 days beginning April 3, 2026, with CT scans every six months.
I am dealing with upset stomach and diarrhea but over all I am in good health, with stage 3 NET Tumors.

I pray for health, and healing for you, and that the peace of God is your daily constant!