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Stage 4 ileal neuroendocrine tumor and stage 3 chirosis of the liver
Neuroendocrine Tumors (NETs) | Last Active: Jul 20 8:31am | Replies (3)Comment receiving replies
@llopez2018 Hi and welcome to Mayo Connect. I have a stage 4 pancreatic neuroendocrine tumor that has spread to my liver and bones. I have stage 3 liver scarring which is one stage below cirrhosis. Stage 3 cirrhosis is more severe. It is common for stage 4 ileal neuroendocrine tumors to progress to the liver which may be the reason for your cirrhosis. They could be interconnected. I know there is a lot to process, so let's try to understand your diagnosis and possible treatment in smaller parts. Do you have any symptoms? What tests/scans led up to your diagnosis? Do you know what grade your neuroendocrine tumor is? Did your care team discuss any next steps with you? Thanks.
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@tomrennie
Now I'm worried.
I have an ileal neuroendocrine primary tumor with metastasis to nearby lymph nodes but nobody said to my liver. My AST and ALT are chronically elevated but that is attributed to non-alcoholic fatty liver disease (NAFLD) stemming for chronic prednisone use. I have hormone imbalances that were attributed to prednisone use too.
My hormone imbalances now seem likely they are caused by NET cancer. Nobody has addressed why my liver enzymes are chronically elevated.
I have more health conditions than I want or need. Most everything seems related to my autoimmune conditions and subsequent immunosuppression. I currently feel well ever since I stopped prednisone and switched to a biologic medication given by a monthly infusion.
I doubt that I will do the Lanreotide injection and the same day as my infusion anymore. I didn't feel so well that day.