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Pemphigus Vulgaris: What treatment helps you?
Autoimmune Diseases | Last Active: Jul 23 10:52am | Replies (17)Comment receiving replies
@barbarajesse
You are amazing and I understand the learning curve involved. I was diagnosed in Feb of this year after years of frustrating misdirection by dentists and periodontists. Never knew the mucosa is considered skin, therefore a Derm is the answer. I am on my second one and quite satisfied with him. I am pleased you finally were able to get Retuximab. I have just started it and I am hopeful, even more so after your story. You are the first person I have heard that has achieved Remission. Congratulations for your courage and determination. !! My goal is an enchilada!! Thank you for sharing. C
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@cicimee2 Good luck and hope You go into remission soon. I am praying for you. 🙏🏻
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@cicimee2 Happy you are taking Retuximab infusions. It was a miracle for me and almost surreal when the sores started healing. I was a little nervous it would come back but the 2nd round made sure it never returned. 21 years later it seems like a bad dream. Praying you have the same outcome. Stay positive.