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Vulvar Cancer: Anyone else?

Gynecologic Cancers | Last Active: 9 hours ago | Replies (253)

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@lindarosemanweiss You have so many medical conditions going that adding vulvar cancer and all the decisions you need to make must be overwhelming. Getting another medical opinion seems like a good idea to me and that's what I do.

You can request an appointment from Mayo Clinic on your own by using this link. There are 3 different locations and you can designate which location you like for your request.
https://mayocl.in/1mtmR63
For Mayo Clinic, you check here if they take your insurance or you can call and ask.

Insurance types accepted at Mayo Clinic:

-- https://www.mayoclinic.org/billing-insurance/insurance/accepted-insurance

Another option is to ask your primary care provider or the surgeon you currently seeing to make a referral. I personally know it's very uncomfortable to ask a current surgeon/physician for a referral. You can explain that this is a very difficult set of decisions to make and you would like a 2nd or 3rd opinion to help you with this.

Are you located near a major academic medical center? Or are you currently seeing a surgeon at such a place?

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Replies to "@lindarosemanweiss You have so many medical conditions going that adding vulvar cancer and all the decisions..."

@naturegirl5 hi thank you so very very much for your response for me. I was so glad to see your response. Yes I am located and working with Barnes, Jewish hospital school of advanced medicine where they have training students, and then we have three excitement centers here in Missouri. I went to my old gynecologist seeing if she could refer me to excitement center since it’s not associated with Barnes, Jewish school of Advanced Medicine. I was hoping maybe they would consider at the site Center chemo or radiation or proton radiation. They do have proton radiation in St. Louis, which is why I keep pushing and saying that we’re thinking maybe we can do something like that without the full eradication. Thank you so much again for your reply. Have you heard of the second opinions after offering radiation chemo or proton radiation therapy instead and shrinking some of these before they do this photo with surgery and maybe not have to do the whole eradication? Thank you again so much.