I wish I had known so many things, and I am only 3 months in to this 'journey'! I wish I had know more specifically about some of the immediate potential side effects of prednisone. When I began having increasingly blurry vision I was very alarmed until talking with an ophthalmologist friend who immediately said "Likely cataracts" which it turned out to be, not the brain tumor i first panicked about! The intensity of the prednisone induced insomnia was a bit of a shocker (wide awake at 3 am for the night often).

I wish i could have known somehow the intensity of the fatigue above and beyond the insomnia.

I am glad I knew that it is good and wonderful to continue to be as active as possible. Continuing to play pickleball several times a week, my beautiful early morning two mile daily dog walks, and adding weight lifting and yoga to that has been great physically and emotionally. Having ongoing PT to guide my physical activities and weight lifting has been also really useful. I feel myself getting stronger even now.