← Return to ADT and rising PSA

Discussion
mjp0512 avatar

ADT and rising PSA

Prostate Cancer | Last Active: Jul 16 1:26pm | Replies (58)

Comment receiving replies
Profile picture for mjp0512 @mjp0512

@surftohealth88 - Hey ya surf. Yep, no chemo = good news. Decision was based of 7/2 PSA of 3.45. Next test 9/1. GUO told me that I would probably be on current meds (Orgovyx & Nubeqa) for life and that my case was challenging since the drugs seemed to work on lymph system but not on bone and a couple of genetic muts made future treatment challenging as well. Classified me as mCRPC and told me he was retiring in 5 days. Ordered 6-week blood work and I wished him well in retirement. Went to check out and my next follow up appt was scheduled with a PA. Since my case is so challenging, I'm pretty sure there should at least be an MD after the name of whoever I see for follow-up so I already made the call to oncology and gave myself my own referral. Our medical system confounds me at times. Had to give myself my own referral for SBRT back in April too. Sheeesh... I feel bad for folks who just let it go.

Jump to this post


Replies to "@surftohealth88 - Hey ya surf. Yep, no chemo = good news. Decision was based of 7/2..."

@mjp0512 Yes! I'm 73, and before PCa, I was not used to seeing doctors - at all - until 2021 when I saw a urologist about a problem, then went quickly into six months of Lupron and radiation. All was well until last December, when PSA jumped. Same urologist, but a couple of worrisome kinks in their treatment process led me to seek elsewhere from his urological commercial chain. Geez, where do I go, how do I do this? I found it was easy. Pick up the phone and dial (I'm old) a number. Or get referred by the pro behind the door you just opened with your phone work.

I've done that recently for a couple of other needs, like cardiology and PT for a cranky hamstring. It's liberating. If you have decent insurance (I'm in the U.S.) someone will pick up on the other end. It just doesn't occur to a lot of us, who've always been taught not to question the doc. It's ironic that because there really is no "system" here, we can often make the Wild West work for us.