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Results of surgery from T1 to pelvis scoliosis

Spine Health | Last Active: 10 hours ago | Replies (19)

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Hi @francine498 šŸ˜Šā€¦.sounds like you are a very fit lady only a few years older than I am.!!! You want my thoughts?! Ok….here goes:

Your scoliosis is not as severe as mine was….which was approx. 55+ degrees on top & 75-80 degrees on bottom. (As you can see from my ā€œalien life-form x-raysā€..🤣

My surgeon could not fully straighten my curve due to age & associated bone loss & probably some rotational issues with my spine.

I knew my prognosis for my future & maintaining an active lifestyle was not promising….& my daily pain level was getting concerning & exhausting. I forgot what it was like to get a restful sleep. So, I felt I should not wait any longer to address my curvature…cuz more complications arise with age.

That being said….. I am not sure why a surgeon would want to fuse you T1 to pelvis at this point, but I am also not a doctor.

I always lean towards ā€œless is betterā€ and staying as active as possible to maintain health.

I would seek out additional opinions at world/renowned research hospitals like Mayo Clinic, or Mt. Sinai. etc. (I don’t know where you live, so I don’t know which hospitals to mention)..

my personal opinion ….and yes, this is just my opinion,… is to stay away from local, smaller town/city spine surgeons……not that they aren’t good surgeons, but perhaps they don’t have enough experience in unusual/outlier medical cases and severe spinal issues….they are only used to the factory assembly line of correcting everyday, average anatomical problems. Kind of like a surgeon who performs hip replacements all the time, but has never dealt with the nerve issues that come with hip replacements on someone with severe scoliosis…& thus, very stretched nerves and anatomical defects.

Not sure if this helps….but my thoughts & worries are with you. Spine surgery is a huge and scary decision….do research on your surgeon choices as much as you can before making a decision.

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Replies to "Hi @francine498 šŸ˜Šā€¦.sounds like you are a very fit lady only a few years older than..."

@elainep hi..my dr is Christopher Hamill at ub orthopedics..Buffalo ,NY..I live in Lewiston outside of Buffalo...He has a good reputation...And mayo clinic said there's nothing they can do that i can't get at home...I sent all test results n images to them....I'm left not knowing where to turn.