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Breast Cancer | Last Active: 1 hour ago | Replies (27)
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I am 68 years old and was diagnosed with Pleomorphic ILC in January of 25. I had a lumpectomy, with clear lymph nodes, and 5 rounds of radiation.
I was allergic to both Anastrozole and Exemestane. I tolerated Tamoxifen (20mg) for 9 months before developing eyelid swelling, facial swelling, hives on my neck, and inner thighs.
I have since read that Tamoxifen is not recommended for ILC.
I have an MRI at the end of July and will see my oncologist early August. I assume they will reduce my Tamoxifen to 10 mg to see if I can tolerate it.
I am new to the site and wanted to see if anyone else had PILC.
Replies to "I am 68 years old and was diagnosed with Pleomorphic ILC in January of 25. I..."
@loridalton Thank you for sharing! I had pleomorphic LCIS but regular ILC. Good luck with your MRI. Take care
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@loridalton I was also diagnosed with PILC in June 2024. Had a single mastectomy (3 nodes with carcinoma), chemo, excision surgery to clear margins and radiation. I tried Letrozole for 2 months with carpal tunnel, insomnia and bone pain, tried Exemestane for 1 month with GI issues and have now been on Anastrozole for 9 months. I'm 67, have 3 trigger fingers, insomnia and recently depression, so I took a drug holiday for 2 weeks and feel GREAT. Totally back to myself again.
I don't want to start another AI, so I'll go back on Anastrozole at some point and do my best.