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When family is worse than the disease

Caregivers: Dementia | Last Active: 5 hours ago | Replies (16)

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@ladamato PS, I just sent you a longer response but know those kids don't hate you. They probably hate the fact, that they don't have the type of relationship that you have with your husband. Or the ability to control their Dad the way they used to. What's interesting, knowing his condition, they probably wouldn't want to be his caregiver anyway. They just want to give you a hard time. There could fear, anger, who knows, deep-rooted stuff from when they grew up, and their parents divorced, and then hell, they blame the evil stepmother for everything while oh, by the way, that evil stepmother is the one doing the caregiving. I'm there. I know. Know that you are not alone and know that just the mere fact that you say, "i will do anything I can to help him stay in the early stages as long as I can" - you've set a loving boundary! Yes, you've got this in spite of his difficult adult children. You have my vote, Best, Karla

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Replies to "@ladamato PS, I just sent you a longer response but know those kids don't hate you...."

@kjc48 Thank you. It's a sad and lonely place to be when you realize that his entire family, his children and his siblings. You take care of him. I was really thinking that his siblings at least would be supportive and helpful. I'm doing the best I can. And I love him. And I will take care of him. I told my son yesterday. I guess I'm going to have to be that person. Who basically says no. No you will not ask him to come over in 100° heat and work on your house. No we do not know yet how is tumor and his cyst are doing from his brain surgery. So no you will not ask him to do physical work for you. His sister even texted him at 1:00 in the morning to ask him what credit union she should use. I mean when I say that these people seriously don't want to get it. It's not that they don't get it because their mother had it as well, as well as all of their aunts and their grandfather. So they've been through this before. They just don't care. They want him to be the way he used to be and he's not and never will be again. But I love him enough to keep trying.