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When family is worse than the disease

Caregivers: Dementia | Last Active: 5 hours ago | Replies (16)

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Profile picture for michelamio @michelamio

Please know that I share your concerns. My mother’s friends do not realize the stress I am under with being sole caregiver for my 89 year old mother with dementia. Each of her friends insist on coming out to our ranch to visit. We put out a blanket text that all are welcome anytime, but few have actually come. (2 out of 6 or 8 friends ) I even have lunch prepared for them when they come out because it is a 90 minute drive from the city. What they don’t realize is my mom is very sick with a progressive disease. Each day is different and can be devastating and demanding at times. I resent that they give me unsolicited advise and judge me on my mother being so far away and sometimes I cancel an appointment for her to receive friends when mom is experiencing agitation, extreme sundowning, or depression.
Hugs, Michelle

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Replies to "Please know that I share your concerns. My mother’s friends do not realize the stress I..."

@michelamio I'm sorry you are going through that. Why is it so hard for people to understand that the best thing they can do is spend time with them. Have lunch. Just be there. You sound like a wonderful person and your mom is lucky to have you.

@michelamio You are in the difficult role of caregiver. Mom's friends are most likely her age and asking them to drive an hour and a half and then cancelling is hard on them too. Why are you concerned with advice that clearly you don't have to follow? The friends are actually mourning the loss of their friendship and want to " fix" it.
The real question is does mom enjoy their visits and are you unhappy with your role and if so how can that be improved?