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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: Aug 13 8:45am | Replies (163)Comment receiving replies
@dadcue
Thanks very much. You sure have had a great deal of experience of every sort it seems. So the advice you give is welcome. In addition to pain, or probably because of it, I'm very limited in being active. Yesterday, I went out for two appointments (nice ones for self care) and I'm wiped out today. I have been athletic my whole life and most recently did long walks and weight training. But that was more than a few years ago. Between now and then I've been my husband's support and caretaker. While he got better I got worse! Love is about caring for others which is easy for me.
I'll write back at each step. Many thanks!
Replies to "@dadcue Thanks very much. You sure have had a great deal of experience of every sort..."
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@mlz I had a robotic hysterectomy 2 years into my PMR diagnosis. I actually had recently started prednisone, I mean like 2 weeks into it since my symptoms were returning. They recommended I stop the prednisone, which I was able to do since I had 30 days to stop before the surgery and at two weeks the adrenals are just going to sleep. Looking back I'm not sure it was the right choice for my pain management, but it was the right choice to simplify surgical healing.
I was fortunate that all the biopsies were negative and the only scary things they found were considered "pre-cancerous". Since the surgery was robotic I had 5 one-inch incisions that healed quickly with no complications. I was allowed to restart the prednisone 2 weeks after surgery.
Take care of yourself and try to let others do the worry part. Please keep us posted.