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When family is worse than the disease

Caregivers: Dementia | Last Active: 5 hours ago | Replies (16)

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Profile picture for kjc48 @kjc48

@ladamato I'm not sure gently reminding these "all consuming, tied up in their life adult children" is the best way to go. Brain surgery three weeks ago, along with Dementia, and they want their father, your husband, to come over and help them move. Ridiculous. At best, all you can do, is to tell them, he loves them, but he can no longer help them. And tell them that as his care partner, you're doing exactly what the doctor has told you to do. Managing and providing quality care for him. As for your husband not understanding why you don't want to be around his children, anymore? Tell him, you'll gladly have them come over if they are respectful to you, no abusive language, and no unrealistic demands the puts your husband at risk. Or gets you upset. We have to set boundaries, especially when caring for a loved one with memory loss and its progression. Best, Karla

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Replies to "@ladamato I'm not sure gently reminding these "all consuming, tied up in their life adult children"..."

@kjc48 thank you. It's a lonely place being the one who has to set boundaries but I will do anything I can to help him stay in the early stages as long as I can. And if that means his siblings and his children hate me well then, oh well. I guess I'm alone in this.

@kjc48

Uncaring adult children and other relatives from a prior marriage of someone with dementia add a whole new layer of stress to an already stressful situation--that of being a caregiver.

As usual, Karla, your advice is good: Set boundaries. Gentle reminders are insufficient when dealing with difficult, self-centered people who feel entitled or who are exploitative.

George's Wife