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MAC & Bronchiectasis | Last Active: Jul 21 12:51pm | Replies (9)
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Replies to "@blm1007blm1007 yes appreciate what you say but the side effects of Fluroquinolone (Ciprofloxacin,Levofloxacin ect) go way..."
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@damcipro
Hi. I was diagnosed with MAC in 2016. I already had a diagnosis of bronchiectasis. I was completely asymptomatic until I got very run down caring for my husband who had Alzheimer's. Long journey...but I wanted to say an infectious disease doc treated me for a year with Clofazimine and Nuzyra ..zero side effects besides a nice tan from the Clofazimine. I tested negative after that. But MAC had already done some dirty work and I had an active hole in my right lung. My pulmonary referred me to a pulmonary surgeon who determined I needed a lobectomy. That was December 2025. In the hospital 2 weeks. No pain except recovering from a chest tube I had those 2 weeks. That goes through muscle, tendons, nerves and your rib cage. That I am still dealing with. Some numbness and discomfort. The say 6 more months for healing. Nerves take forever. But I'm so much better! Still have to clear mucus because I still have bronchiectasis but I'm so much better. Ask about those 2 drugs. I am still negative but worry about a reinfection of course. I no longer garden which I miss. I was avid but now I have a helper that takes care of all that for me so I can still enjoy my yard and plants. I have been a physical fitness enthusiast most my life and even ran marathons. I started back to the gym two months after surgery and pretty much back to my routine including weight lifting. God Bless! This journey is rough but keep plugging and educating yourself.