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Started treatment for both M abcessuss & MAC

MAC & Bronchiectasis | Last Active: Jul 30 7:22am | Replies (13)

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Profile picture for reneemc @reneemc

@mjb24 Mary , I had 11 consecutive negative sputum results. Probably false negatives.
I changed Drs and now the Norvartis program status has changed, they are being approved for availability in local pharmacies . Don’t know how soon that will happen.

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Replies to "@mjb24 Mary , I had 11 consecutive negative sputum results. Probably false negatives. I changed Drs..."

@reneemc I have read several of your posts and with this last I had hoped you finally had success with the treatment. I am curious why you think the negative cultures are inaccurate. Do you still have symptoms? Our situations are somewhat similar as I also have cavities that do not want to close and I have been on the antibiotics and Arikayce for 2 years but continue to have positive sputum samples. I added Clofazimine Oct 2025. It is a long haul and can feel discouraging at times. I wish you the best and hope your new doctor will be able to offer support and all available options. God Bless