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new treatment option coming !?
Prostate Cancer | Last Active: 21 hours ago | Replies (9)Comment receiving replies
Thanks !
The NW MO actually recommended the orgovyx and darolutamide as the 2 drugs husband would start with. Also said if a "tumor board would need to be convened, it would involve the NW Drs downtown." And that "all the Drs text each other all the time". It makes sense that they do. It's probably something like: "guess what walked into my office today! I got a Zebra! So excited to treat someone with such a dangerous, aggressive disease. Made my day". Pardon my sarcasm--its meant with lots of humor.
Replies to "@jeffmarc Thanks ! The NW MO actually recommended the orgovyx and darolutamide as the 2 drugs..."
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@dmx
Interesting that you found me and replied in a completely different set of messages.
I’ve had the same GU medical oncologist for the last eight years. We have never met in person, That really isn’t necessary. I’ve been meeting with every three or four months either video or telephone. She’s actually in the same city I’m in, But she was originally across the bay and there was no need to actually go see her since she had all my records.
You probably could connect up with that Northwestern oncologist I mentioned and not actually have to be physically there to have him directing your treatment.
You want to have a Genito Urinary Oncologist Working on your case, not just a medical oncologist. It could be that is what you’re working with but the ones that I mentioned are both GU oncologists. They specialize in prostate cancer and keep up with everything going on. Medical oncologist don’t specialize in anything usually and work with many different types of cases. That’s why getting the right doctor managing your case is important.
It could be you are working with the right doctor, but that’s why I brought it up originally And gave her the name of two really top-notch doctors to talk to.
It is good to hear that they are Recommending those drugs. I’ve had prostate cancer for 16 years, I’ve had Surgery and then radiation and it’s come back four times because I have the genetic problem of BRCA2. I’ve been on Orgovyx and Darolutamide For almost 3 years and it has kept me undetectable for the last 32 months. I’ve been on other drugs over the years that didn’t work as well.
You could request to have a second opinion with Dr. David J VanderWeele just to get him involved in the decision-making process.
Just some things to think about, You need to realize that prostate cancer is a chronic disease for almost all of us not a deadly disease.