← Return to Pacemaker recipients: Looking for support from others

Discussion
Comment receiving replies
Profile picture for Linda, Volunteer Mentor @walkinggirl

@jimgrupe I am sorry to read about all of the frustration you have experienced for your heart and pacemaker care. Yes, you deserve to be heard and receive the very best care, and we each need to be our own vocal advocates. I do not know where you live but recommend seeking out a Center of Excellence (COE) for heart care. If one is not nearby, many people in the Connect discussions travel for care. Also, teaching hospitals and doctors with privileges at these places (medical school training grounds) very often are top facilities with excellent caregivers as I have discovered here in Upstate NY. I just did a search; in my browser I typed in "heart block experts capital region ny" and my electrophysiologist is listed among them. Wishing you success in finding a doctor you are comfortable with. Let us know how your journey is proceeding.

Jump to this post


Replies to "@jimgrupe I am sorry to read about all of the frustration you have experienced for your..."

@walkinggirl Alas I am in Florida, where standards are quite a bit lower. My "trick" for trying to find better doctors is to find someone who was educated in the NY area. 🙂 I was seeing doctors at a training hospital in Orlando rated #1 by US News, where trainees assigned to collecting blood samples couldn't find a vein. I am changing to the other top-ranked facility in the area. Both are COE.

The facility I was going to is quite large - referred to by them as a "campus". I think a large part of the problem is the size. I almost never saw the same doctor twice while in the hospital.