I completely understand your anxiety about the diagnosis and long treatment of antibiotics. It took me months to accept my Mycobacterium Abscessus diagnosis. Hope you are taking a probiotic daily. And if you are nauseous, you might want to ask for a Zofran script to help, I cut mine in half before I take my Nuzyra pills. If you are taking Linezolid please be careful if taking it more than a couple months, after my 3 months I was diagnosed with neuropathy in both feet/toes.
My Infectious Disease Dr submitted my paperwork for the Clofazimine clinical trial and hasn’t received the drug yet.
Last week I asked my ID Dr for a break for a month to enjoy several activities/events the rest of the summer.
I started with IV’s in August 2025 (7 day inpatient) then middle of October transitioned to oral meds (Nuzyra & Linezolid) and inhaled Arikayce. Also I’ve had elevated liver enzymes with some improvement on my recent bloodwork. My next CT is in August.
Sending you positive thoughts and hoping you don’t have side effects of the meds. I have a good line of communication with my ID Dr. I message him on mychart and he is very responsive.
Take a step at a time. 😊