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Chris Gautier, Volunteer Mentor avatar

Which Seizure Trigger Is Your Hardest Battle?

Epilepsy & Seizures | Last Active: 1 day ago | Replies (78)
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Mine. Telling people till I am blue in the face aka husband parents brother extreme unnecessary emotional distress. So I am blamed told I am weak etc for having this boundary. Seizure free over 12 years. Relationship ending or altering in all thesd relationships.

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Chris Gautier, Volunteer Mentor | @santosha | Jul 20 9:10am

Hi @kb2014a
Thank you for sharing something so difficult. What you're describing sounds incredibly painful — having to set a boundary to protect your health, and being met with blame instead of understanding, from the very people closest to you.
It's a hard trade-off: you've been seizure-free for over 12 years, and it sounds like this boundary may be part of what's kept you well. But that same protection has come at the cost of relationships changing or ending. That's a heavy thing to carry, even when you know you're doing what's right for your health.
Has setting this boundary gotten any easier over time, or does the pushback from your family still weigh on you the same way it did at the start?
Chris

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