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@rsp21224 I think worry just comes with the territory when our loved ones are involved. If your husband has gone through a couple of years of treatment for his Hodgkin’s Lymphoma, he’s no stranger to ‘some’ of the side effects of the pre-conditioning chemo. But this chemo is obviously more intense so it will let its presence be known for a short while! So hang in there, my friend. You’ll both get through this.
Having the added challenges of communication between your hubby and team would certainly lend to more anxiety for you. It might be helpful to grab a little notebook where you and your husband can jot down notes. Or you each have a little journal. That way he can write things of concern or questions he may want you to ask his team…You could have your own lists of questions/comments too. Makes communication a little easier with the team.
Just remember, the BMT team is part of your new family. They’re very dedicated but they are also not mind readers. So do not be hesitant to bring up any changes, concerns, share ideas or what have you. It is never an imposition to ask questions of the team! ☺️

Did you have to relocate far from your home base for the 100+day stay in Jacksonville?

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@loribmt no we’re only about an hour away, but we are being House at the lodge here on the grounds of the Mayo Clinic so that’s really awesome. I have no complaints about that whatsoever and I had my counseling this am just certain days and times I just feel like I’m all alone, but the doctor came in. Everything is going great so I’m gonna just try not to worry so much but I appreciate you reaching out to me that it helps it really does