Replies to Hello @rkklinger I appreciate you sharing about Ron's PRRT. Perhaps someone else will post about hair...

← Return to PRRT Treatment: What to expect?

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Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (60)

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@hopeful33250

I appreciate you sharing about Ron's PRRT. Perhaps someone else will post about hair loss. I'm wondering if Ron has had any other treatments before he began PRRT. Is hair loss his only side effect so far?

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Replies to "Hello @rkklinger I appreciate you sharing about Ron's PRRT. Perhaps someone else will post about hair..."

rkklinger | @rkklinger | Jul 12 1:00pm

@hopeful33250 In 1995, he had 1 NET removed which was located between the Illieum and Bowel. There was no treatment then. 12/30/23 we learned that his body and skull are full of tumors. Ron has been on Lanriotide for 3 1/2 years with no side effects. In May we learned that his tumors are increasing which qualified him for the PRRT treatment. Our assumption is that the hair loss is due to the radiation. He has lived a very active normal life. Unfortunately now he is also dealing with AFib which has complicated things.

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