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Profile picture for rsp21224 @rsp21224

@loribmt thank you. Classic Hodgkin’s lymphoma he is 74 years old. 2 years of treatment that failed. I am so grateful and I pray for strength daily I do try to disconnect to rest but my husband is hard of hearing and he has a speech disability so communicating for him is very difficult and I just get worried probably more than I should. Thank you for connecting with me it is helping

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Replies to "@loribmt thank you. Classic Hodgkin’s lymphoma he is 74 years old. 2 years of treatment that..."

@rsp21224 I think worry just comes with the territory when our loved ones are involved. If your husband has gone through a couple of years of treatment for his Hodgkin’s Lymphoma, he’s no stranger to ‘some’ of the side effects of the pre-conditioning chemo. But this chemo is obviously more intense so it will let its presence be known for a short while! So hang in there, my friend. You’ll both get through this.
Having the added challenges of communication between your hubby and team would certainly lend to more anxiety for you. It might be helpful to grab a little notebook where you and your husband can jot down notes. Or you each have a little journal. That way he can write things of concern or questions he may want you to ask his team…You could have your own lists of questions/comments too. Makes communication a little easier with the team.
Just remember, the BMT team is part of your new family. They’re very dedicated but they are also not mind readers. So do not be hesitant to bring up any changes, concerns, share ideas or what have you. It is never an imposition to ask questions of the team! ☺️

Did you have to relocate far from your home base for the 100+day stay in Jacksonville?