Hello everyone,
Been awhile but I thought I would share some new learned information.
A speech and language pathologist is a must have for the physical therapy exercises to help minimize the Aphasia and to prove options for physical therapy exercises to possibly rebuild the neuropathways in the brain and learn different ways to function. Notes and journals help enormously with the memory and helping the constant cognitive fatigue. Never let yourself get too cognitively fatigued as I have found with lots of experience that it can actually make the Aphasia speech issues, the physical balance that makes it feel or seem like a severe case of Vertigo, slow down functioning, memory and functioning all together. Lots of breaks help….taking short quiet breaks or power half hour naps with eyes closed helps prevent the fatigue as it takes days to recover from cognitive fatigue symptoms after becoming fatigued…The head pain I have found for me is a combination of eye convergence insufficiency….daily physical therapy exercises for the rest of my life helps the head pain a lot and when pushed to hard to become cognitively fatigued or overly stressed or pressured at work also causes more head pain….Prioritize yourself and your health, know your limits and learn your rights. Never ever let the stress stay unaddressed at be allowed to cause a physical stress reaction after a TBI as there are so many injuries, physical consequences relating to the Cortisol and Adrenaline levels.
Hope everyone is staying well, being your own advocates and doing as much research as you can, that has helped me the most and got me to the appropriate specialists needed to get as much treatment as possible. It has been and is still the toughest recovery and grieving process I have ever faced, but with God’s help I have been blessed with a different life. I still get very sad and constantly have to grieve the loss of who I will never be anymore but God has a reason for everything. I hope everyone is also finding a way back into some kind of life after their TBI’s and hopefully this information helps someone, even if it’s knowing you are not alone….I understand and see you too! You don’t need to be perfect, or the same, so what if we are different now we are all still beautiful, worthy, loved and so very special for being one of a kind originals.
Thank you for talking about the grieving process of letting go of our former selves and learning to care for the new me and new normal. I had not heard anyone else talk about that.