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Not exactly sure what I have Some say Neuropathy

Neuropathy | Last Active: Sep 28, 2017 | Replies (24)

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@parus

I find neuropathy is uncomfortable and can even be discouraging...Once I came to accept and "sort of" embrace the condition (I prefer condition to disease, my issue). The meds that were prescribed did negative things that were worse than the Neuropathy. I know others that can and do take them as it helps. I was angry for a while because nothing helped "me". Anger or negative feelings can cause the neuropathy to be worse for for this Idiopath...grin.

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Replies to "I find neuropathy is uncomfortable and can even be discouraging...Once I came to accept and "sort..."

Yup, been there and done that - Psst, my English teacher taught me better but it's all because as a technical writer with "iv'e been moved", I was forced to write to the 8th grade language level. I had many angry sessions with translation centers in the early days but had to resign to doing the best job I could with what tools I had. I let my PN go and did nothing about it for close to 20 years. But it started walking up my legs which made me rethink my options. That's when I went to the neurologist, had the EMG and exam and was given the idiopathic small fiber peripheral neuropathy diagnosis. Even though I only have the numbness I didn't like the neurologist telling me their was no real treatment that was going to help and to just let him know when it got worse....HELLO, I don't want to wait. I started doing my own research and found Mayo Connect and more.

So, my new motto is never give up (could change it to never give up the ship since I was in the Navy).

Happy Tuesday!

John