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Looking for Direction on how to make the right treatment choices
Bladder Cancer | Last Active: Jul 12 9:34am | Replies (32)Comment receiving replies
@jr1466
Excellent news!!!!!
Can't recall what stage and grade you were, but NP if you don't want to share that.
My husband is T1, High grade..ugh.
Thanks for describing your side effects...we were told they can be cumulative, but we'll see.
I wish we were being treated at Mayo....but our uro gets such great reviews and very smart.
I also read to ask the techs to introduce the BCG slowly...to reduce side effects.
Will def ask about that dosage.
So happy for you, JR! May you remain NED and enjoy this crazy life.
Replies to "@jr1466 Excellent news!!!!! Can't recall what stage and grade you were, but NP if you don't..."
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@glinda47 I’m T1 HG as well. Carcinoma in situ. I am 53M.
The one side effect I neglected to mention was some tissue discharge during weeks 9-10. This was not painful, just a little surprising to see. The biggest ones were roughly the size of my fingernail. Apparently it’s leftover scar tissue from TURBTs that finally let go once the BCG had eaten enough of the bad cells around it.