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Not exactly sure what I have Some say Neuropathy
Neuropathy | Last Active: Sep 28, 2017 | Replies (24)Comment receiving replies
Hi John,
Thanks for your explanation and your history, I am not real sure when I started feeling the tingling in the toes and bottom of the feet. Reflecting back I am sure it has been around for awhile. When I first noticed it I didn't really take notice because it was not really all that bad. I would guess it has been around for at least 12 years but not really sure. Your information seems to be similar to my situation, I see so many ads for the miracle drug or what ever they were peddling. It is a real shame that this occurs but we all need to be aware. From what you are saying I have come to the same conclusion that there really is nothing that will reduce the tingling or swelling in the ankles. My only relief in the swelling is during the time we are sleeping.
I would like to find mainly the reduction of swelling in the ankles while I am driving. It seems that not moving the foot very often from the gas peddle is a real problem that seems to irritates the swelling and the problem. This makes it real difficult to do lots of traveling in a day in our RV.
Hopefully, someone will come up with some relief that reduces the tingle and swelling. Until then I guess we just live with it.
Garry
Replies to "Hi John, Thanks for your explanation and your history, I am not real sure when I..."
Hi All,
Because this is a new thing for me Neuropathy, it is very difficult to hear so many tell their stories and no one has a solution to this disease. I read that it is only going to get worse and the years spent keeping health and eating properly and exercising daily comes down to nothing that I did prevented this from happening. I still wonder if this is inherited type of disease, From what I see swelling of the ankles, tingling of the toes and feet and difficulty walking soon to be.
How does the rest of the group see there situation?
Hello @gfisher100 - I was diagnosed with idiopathic small fiber peripheral neuropathy and the neurologist thought it may be hereditary but the only way to prove it was testing relatives and that's not really possible for me plus I'm not really sure about the value of knowing it's hereditary. The best line I have heard about where the diagnosis "idiopathic neuropathy" came about was from an 80+ year old neurologist doing research to develop an easy test for primary care doctors to determine if you have peripherall neuropathy. He said the term came from the idiot neurologist who did the diagnosis. He got quite a laugh from the crowd - all of who had peripheral neuropathy.
I don't see the situation as hopeless. Would I like not to have PN - you bet but I was dealt these cards and just have to play them out the best that I can. I try to learn as much as I can from any resource that I can find. Mayo Connect is one of those resources - no better way to gather information and compare symptoms, treatments and at the same time share your own story that may help others who are reading but not posting or just don't know what to ask. Connect members have a lot of experience of what has worked for them and what hasn't worked.
Don't give up your search and keep asking questions. The more we learn about our health issue, the better questions we can ask our doctors and help them help us.
John
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I added a couple of natural supplements in hopes of reducing the inflammation - turmeric and collagen that is cold water soluble and tasteless (more or less). I even have my wife on the collagen because I told her it also helps the nails and hair. She saw a definite improvement in the growth of her nails - she's 73 and a whole lot healthier than me. It also helps me drink more water. Water and staying hydrated is another really important thing that I try to do.
Keep searching, there's an answer out there somewhere! ... John