Connect
← Return to Not exactly sure what I have Some say Neuropathy
Discussion
Not exactly sure what I have Some say Neuropathy
Neuropathy | Last Active: Sep 28, 2017 | Replies (24)Comment receiving replies
Hello @gfisher100, welcome to Mayo Connect. I'm glad you found us. This is a good place to share health issues, ask questions and learn what others with similar health issues are doing for treatments. The symptoms do sound like neuropathy but the only way to know for sure is to be tested for nerve damage (EMG) and meet with a neurologist. There are many types of autoimmune diseases that share the symptom of neuropathy. Have you seen a doctor or a neurologist?
Here is one of the easiest to understand explanations of small fiber peripheral neuropathy by Matthew B. Jensen. Assistant Professor of Neurology, University of Wisconsin:
John
Replies to "Hello @gfisher100, welcome to Mayo Connect. I'm glad you found us. This is a good place..."
Hi @gfisher100, the tingling in the toes and the bottom of the feet is what made me think it sounds like neuropathy. I have no medical training and am not a medical professional but I do have peripheral neuropathy (PN) and have had it for over 20+ years. Mine is only numbness and tingling in the feet and ankles now. It started in my toes and similar to what you describe. The only real way to know is to have an EMG test and go to a neurologist to see if they can give you a diagnosis from the test and exam. I still have swelling and discomfort with my feet when I've been driving a long distance or sitting/standing for a long time...just have to keep moving. Unfortunately there are a lot of schemes out their to get money off of people suffering from PN so you really have to do your research.
I found something that has worked for me and others but may not work for everyone. You can view my story here on Connect at this link below:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=33#comment-36103
You might want to read through what others have shared in the discussion "Anyone here dealing with peripheral neuropathy?" under the Neuropathy Group. Here is the link: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/bookmark/?ajax_hook=action&_wpnonce=d2c60c017b
John
Connect
Hi John,
Thanks for the information. It is a little above my degree of ability to actually comprehend all of what the video explained but it helps me to further some understanding. I am wondering when you say the symptoms seem to point toward Neuropathy. I have been taking some vitamins that were recommend by some supposedly experts. They don't seem to make a lot of effect with the swelling of the ankles.
I would be interested in my symptoms that I have presented which ones would lead you to believe it is a form of neuropathy?
Not knowing much about this disease I was unaware it even existed until someone made the suggestion that it was neuropathy. Since then I have been trying to find out more and what to do about it? Is there anything that will help? I have read the idea about shock, heat, magnets and a few others. Any of these really work?
Thanks