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I'm a human puzzle looking for answers

Autoimmune Diseases | Last Active: Jul 28 5:09pm | Replies (35)

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@fedupintexas I have so many symptoms that my chart reads: dermatomyositis (I’m Tif-1 positive), RA (even though I don’t have a positive CCP but my RF is 80), Psoriatic Arthritis (as my big joints and muscles hurt), NR-Axial Spondyloarthritis (I have terrible lower sacral-iliac pain) - and since I’ve developed some new neurological symptoms - tremors and hyperreflexia - I noticed UCTD “undifferentiated connective tissue disease” has been added …

I have so many different symptoms I no longer fit into any tidy box that I’m in UCTD territory! I’m kinda fed up in NY too so I feel you! Don’t give up though. Keep looking for a doctor who listens. It took 4 rheumatologists to finally find a good one. She’s no longer interested in a label. She’s just looking for a drug or combination of drugs that treats my symptoms. She fights against the insurance companies to get me what I need and thinks outside the box.

When you’re not a straightforward patient - that’s what you need: an out of the box thinker. Hope you find some answers soon.

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Replies to "@fedupintexas I have so many symptoms that my chart reads: dermatomyositis (I’m Tif-1 positive), RA (even..."

@pm56 thank you! Wow, I'm sorry for all your going thru as well. I can relate so much! All these new neurological episodes appear like on 2 separate occasions about 6 mths apart I experienced excruciating burning, shock like sensations only on my right side of face, jaw, throat for over 4 hrs each time! It was absolutely horrible. From my research that is a very vital piece of info I need to share with neuro. Glad you found a good doc. I'll update ya when I find my fit! I know it's coming. I won't stop til I do. Thank you again!