Replies to @pm56 thank you! I believe I have but will double check. I also have researched dermatomyositis...

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Autoimmune Diseases | Last Active: Jul 28 5:09pm | Replies (35)

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@fedupintexas

@pm56 thank you! I believe I have but will double check. I also have researched dermatomyositis and a lot of that fits. So many different ones I seem to have a little from each. That's why I feel so positive about Mixed Connective Tissue Disease (MCTD). Thank you for your feedback I appreciate it

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Replies to "@pm56 thank you! I believe I have but will double check. I also have researched dermatomyositis..."

pm56 | @pm56 | Jul 11 11:46am

@fedupintexas I have so many symptoms that my chart reads: dermatomyositis (I’m Tif-1 positive), RA (even though I don’t have a positive CCP but my RF is 80), Psoriatic Arthritis (as my big joints and muscles hurt), NR-Axial Spondyloarthritis (I have terrible lower sacral-iliac pain) - and since I’ve developed some new neurological symptoms - tremors and hyperreflexia - I noticed UCTD “undifferentiated connective tissue disease” has been added …

I have so many different symptoms I no longer fit into any tidy box that I’m in UCTD territory! I’m kinda fed up in NY too so I feel you! Don’t give up though. Keep looking for a doctor who listens. It took 4 rheumatologists to finally find a good one. She’s no longer interested in a label. She’s just looking for a drug or combination of drugs that treats my symptoms. She fights against the insurance companies to get me what I need and thinks outside the box.

When you’re not a straightforward patient - that’s what you need: an out of the box thinker. Hope you find some answers soon.

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