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Profile picture for irene5 Irene Estes @irene5

@kathyjjb My UMASS pulmonologist told me no more inhalers due to their introducing more unkind pathogens into my lungs. This was a few years ago that he told me that. I have always listened to him. Nebulizing four times a day is his RX for me plus antibiotics . I have had MAC and many other pathogens along this journey. I don’t know if the no inhaler use is a new protocol for people like us. Irene5

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Replies to "@kathyjjb My UMASS pulmonologist told me no more inhalers due to their introducing more unkind pathogens..."

@irene5 Hi Irene, I think if there's a pill that helps those with inflammation, it's better than the inhaled steroid (who knows since Brinsupri is so new). I think a lot of people still need the inhalant. For me, I still need 1-2 times per month during allergy season. Though the Brinsupri and Montelukast have almost eliminated my airway inflammation. The reason, I don't like the inhaled steroids is due to the negative effects on lung immunity. When I went to NJH last year, my ID doctor told me that she wanted me to go off the inhaled steroids-for that reason. She thought I could after going through a 20 year NJH file and saw that I did it before. But this time, I needed the Brinsupri and Montelukast to make that possible.