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FS-DFSP (Fibrosarcomatous dermatofibrosarcoma): Anyone else?
Sarcoma | Last Active: 1 day ago | Replies (55)Comment receiving replies
@anikadow I hope you a speedy recovery and you come out of it Stronger than before.
I know it takes a toll on you, just take care of your mental health. Good times coming ahead
I was also diagnosed with Fs-DFSP on back of sclap, after the doctor misdiagnosed it in the first surgery thinking its a cyst. however i went for the second surgery WLE, with clear margins of 3CM.
my only concern was that my deep margin was 0.3CM but doctor removed periosteum, and the layer of my neck muscle as a precaution. however i have my first MRI follow-up next month as doctor mentioned to monitor it every 3 months.
Replies to "@anikadow I hope you a speedy recovery and you come out of it Stronger than before...."
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@humbl3reh192
Thank you so much for your kind and encouraging words. They truly mean a lot to me. It can definitely be mentally and emotionally exhausting, so I really appreciate the reminder to take care of my mental health.
I'm also grateful to connect with someone who understands this journey. Since FS-DFSP is so rare, it helps to be able to talk with someone who has gone through a similar experience.
I'm glad to hear your second surgery achieved clear margins, and I sincerely hope your MRI next month brings reassuring news and shows that everything is healing well. I'll be keeping you in my thoughts and wishing you all the best. Please keep me updated on how it goes.