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I'm a human puzzle looking for answers

Autoimmune Diseases | Last Active: Jul 28 5:09pm | Replies (35)

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Hi!
So sorry you are experiencing all this at a young age. I’m 67 & have been dealing with autoimmune diseases for over 30 years. I have 3. My whole family has them & it’s is harder for me to watch my 2 daughters, 37 and 41 years old, start having to deal with their emerging symptoms. What makes it all worse besides the pain & discomfort is the anxiety & fear when no one can give you an answer.
From everything I’ve been through, I would say one of the most important things is to find a good doctor that will keep digging until they find a diagnosis. It is only then that you can start treatment & get some relief physically & emotionally.
There is a wonderful Rheumatologist in Texas, closer to Dallas I think, who I have learned so much from watching her YouTube channel. Her name is Dr. Elizabeth Ortiz from Connected Rheumatology She has a good website too. She has information on how to find a good Rheumatologist & what kind of questions you should be asking.
Keep searching, even if it means firing a few doctors along the way.
It took years for me to get a diagnosis after being dismissed with “ you’re just depressed or a too busy Mom”. Finally got my Lupus diagnosis along with Hashimotos & diabetes all at age 35.
The latest is Giant Cell Arteritis (GCA/PMR). I once again, was released with no answer from 2 different ER’s, only to get so sick that my husband brought me into Mayo Clinic about an hour from where we live near Phoenix. They immediately admitted me & reassured me that they would figure out what was wrong & keep me until they do. And after 2 weeks we had an answer, GCA, a treatment plan & I’ve been home slowly recovering, feeling better. I shudder to think where I would be if Mayo wasn’t an option. But I’m sure there are good doctors in Texas; check with hospitals that are connected to Universities; teaching hospitals.
Sorry this ended up being so long but I hope it had helped a bit. Hang in there & good luck finding answers.

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Replies to "Hi! So sorry you are experiencing all this at a young age. I’m 67 & have..."

@momac59 thank you so much! I can so relate..so glad you got answers. All of this makes me feel more hopeful that I too will find my fit! Thanks so much!