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Autoimmune Diseases | Last Active: Jul 28 5:09pm | Replies (35)Comment receiving replies
@loriesco
Sounds like me when I was 48. I am 69 now. Like others have said UMUST be your own advocate. What I found out coincidentally was multifold at the time. I had an undiagnosed viral infection called hepatitis C. The doctors did not find it. The blood bank did. I went to the doctor three times a week for inflammatory type symptoms. At the same time I ended up going through menopause early, which sounds like some of your symptoms. The two were entirely unconnected on top of that I ended up with gout flares, which was entirely unattended to, even after I went to the hospital for the gout flares to be treated. In addition, I was hypo and hyperglycemic, which also presented problems. All my conditions were unrelated to each other, and it made it difficult to not only diagnose my main complaints, but treat my severe inflammatory conditions, weakness, and fatigue. The gout was only formally diagnosed two years ago and it was a fluke because someone here mentioned a supplement that I tried because I was always in pain. Turns out all the arthritis doctors I see at UCSD were all wrong. My x-rays showed severe osteoarthritis, so that’s all they looked at. Turns out my pain was coming from the undiagnosed gout. Currently I am dealing with my blood glucose being out of whack. Because they’ve neglected to deal with that over the last 20 years, I will place money. I’ve probably skipped the pre-diabetic phase and I’m in the diabetic phase. I am saying all this because you just keep on plugging away. The doctors don’t do a good job of giving you enough time. I just went to a doctor a couple weeks ago for anemia, which has been a lifetime problem and he says that I don’t have anemia. It’s possibly internal bleeding that may be related to a cancer. I have to repeat tests. I did seven years ago that are difficult to accomplish like colonoscopy and endoscopy. I probably won’t do that. He’s a very fine doctor, but he’s going down a narrow rabbit hole, and I have other more important things to attend to like the blood sugar. You have to do your own research, you have to keep pushing and you have to try and avoid damaging solutions to your body. On top of all that you have to keep searching out better doctors. A doctor may be good in one field, but maybe you don’t present clearly and then that Dr. isn’t really good. I found that women tend to be better than men because they are lateral instead of linear thinkers in medicine. Men are better at going down linear paths whereas women are open to lateral ideas. That’s my experience.
In the meantime, what I suggest is finding a good hormone specialist to check that your hormones are balanced, finding a good acupuncturist for acupuncture school that can relieve your symptoms, finding a good holistic Doctor Who will look at supplements as opposed to medicine, checking your diet for lactose or gluten intolerance (I ended up with both and eliminating them from my diet was a big win for my health) . Go easy on yourself and know that this all takes time. I never really bought the fibermyalgia diagnosis I received in 2004. If I had, it would’ve shut me out of resolving various problems that were all lumped under fibromyalgia. For me, I found that it’s crucial that I have HEME iron supplement. That alleviated some issues and got me the iron I needed in a way that it was bioavailable. That had to be in conjunction with B12. My body was not digesting the food. It ate well because I ruined my intestines by not knowing I was lactose intolerant for my whole life. A lot of my answers came by, looking at my ancestors and their diseases and what they incurred as they aged. It makes sense that all this is happening to you at a time where you are in a major life change about app approaching some stage of menopause. Make sure you know what stage you are in. When I showed up at the specialist at 47 and she took the labs she said you’re not entering menopause you’re done.. Sorry for the length but suffice to say that we’ve gotta pay attention to our bodies because nobody else will as well.
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@loriesco Thank you so much! I too had my hormones checked about 3 yrs ago and I was POST menopause! I had a partial hysterectomy in 2008 but still have my ovaries..so assumed I would go thru menopause normally! HA nothing goes "normally" for me! What ever normal is? And yes I agree I have learned to keep a diary of how I feel each day and possible triggers. If I don't I can't remember what to tell the Docs bc if I'm not experiencing said pain at time of visit it's hard for me to think of mentioning it. I have had to be my own advocate and I read and research everything that I deal with to be better educated. At times I feel i know more than a few of these I've seen who have a degree. I keep the faith that I will find the right doctor, eventually. Thank you so much for sharing your experience with me. It means a lot.