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DiscussionNeed advice for communicating with doctor
Autism (ASD) | Last Active: 2 days ago | Replies (16)Comment receiving replies
Replies to "@readytogo Hi again. I just wanted to check in and see if you got the results..."
@keeg1010
Also thank you so much for checking in!
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@keeg1010
Oh, geeze, I can't believe I forgot to update. The GI was super great at the first appointment. She was a little hard on my parents for not taking me in sooner, but she was nice to me, and she spoke directly to me and looked at all my symptom logs. She went over everything with us, and we found out that I was extremely anemic and suffering from a lot of intestinal inflamation. Anyway, she rushed a colonoscopy as soon as possible. The prep was horrible, but I actually had a really great experience at the hospital. Unfortunately, since then, the GI hasn't really talked to us. She put me on a steroid taper, but I have to wait to find out the biopsy results until the end of the month, which is frustrating. At one point, I was having an allergic reaction, we scheduled a phone appointment, and then she called back to cancel it and say it wasn't important. During that time, I was really struggling with my symptoms and the side effects of the meds. Now that I'm almost 2 weeks in, the meds are finally slowly starting to take effect, but it's so frustrating to have to wait and not even be able to ask any questions I have. Even when I picked up the meds from the pharmacy, she didn't really let me ask about my meds either. I found a way of potentially accessing my medical records through the government to get the results early, but in the meantime, I can't really do much. So far, the GI made one mention of Crohn's, so there's a potential of me having that, but I could also have any number of other issues.