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@jeanh73 Welcome to Mayo Clinic Connect! As you browse through the discussion here, you will notice that many members say the same thing, not being told by their doctor until later.

Chronic kidney disease can have one or several base causes. The most common is high blood pressure, or diabetes. Beyond that, genetic factors, medication side effects, lifestyle, or other health conditions may play a part. In my case, my then-PCP told me I was Stage 2, and not to worry. Yeah, right, Uh-huh. At that point, in 2006, I put myself on a renal diet, against the advice of my doctor. They thought my kidney disease was a result of having lupus. It wasn't. For me, it is because of a rare autoimmune condition. Being proactive allowed me to stay off dialysis until 2022!

As @nycmusic and @quirky9 posted, being your own advocate, and stepping up to make changes in diet and lifestyle can go a long way to bettering your health. Chronic kidney disease can sneak up on us. We go merrily along our way, feeling pretty "okay". For the most part, CKD is quiet and our body gets accustomed to slight changes, that build up over time.
Ginger

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@gingerw I also wanted to reiterate that CKD 3a can raise your risk for kidney cancer. Sometimes it is the other way around and the tumor comes first in younger people. I swear I felt fine pretty much until late menopause at 56. Then I turned 59 and had a retinal detachment end of Jan. 2025 followed by 2 other eye surgeries. I turned 60 and still ok. Lots of stress at my job. Tired after work and on weekends thinking it's my weight and age. Then bam! Find out I have been living with 6cm tumor for years in my left kidney! I feel like every person with CKD should have a screening ultrasound of their kidneys. Most women are asymptomatic, put up with fatigue. Usually have comorbid conditions, like me! Everything causes fatigue the older you get. If my tumor had been found a few years ago, less than 4cm or smaller, I would not be walking around with only 1 kidney now with stage 3 ccRcc. It could've been removed and saved my nephrons. That kidney still worked, gone now. I know it is blessing, I am not sicker. I am sick enough to get disability "compassionate allowances" . The 5 year survival rate drops at stage 3. I wish I wasn't unemployed now. I wish I didn't live in this state or this country where killing immigrants and Iranians is what they budget for, instead helping citizens and supporting medical research. I feel if you don't have a million in the bank, you won't be able to retire or live if you get sick. Not a good day, im sorry Ginger.