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Anyone have side effects after Lanreotide injection?
Neuroendocrine Tumors (NETs) | Last Active: 6 days ago | Replies (117)Comment receiving replies
@hopeful33250 I appreciated hearing from people who have small bowel cancer. My bowel cancer was discovered when a liver biopsy was not found to be metastic bladder cancer!
I do NOT have any symptoms except for some fatigue... so the fact that the side effects may produce the symptoms (that they are supposed to lessen ... but which I am presently NOT experiencing) upsets me.
I do not understand why I could not just go straight to radiation treatments which are believed to shrink the actual ileum tumor.
Replies to "@hopeful33250 I appreciated hearing from people who have small bowel cancer. My bowel cancer was discovered..."
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@sposieneedshelp
When I was diagnosed with a NET, I did not have any symptoms as well. That is true for many of us with NETs. I have had three surgeries with no symptoms beforehand. You mentioned that you hesitate to have the monthly injections because you do not currently have symptoms. As a result of the injections, many members have found a reduction in the tumors. As with any medical treatment, it is important to weigh the risks and possible benefits.
At this point, a second opinion regarding treatment might be worthwhile. It would be beneficial to you if this second opinion were with a NET specialist. There are NET specialists at all three Mayo Clinic locations (appointment information is available at http://mayocl.in/1mtmR63). If it is not possible to be seen at a Mayo facility, here is a link from the Neuroendocrine Tumor Research Foundation with NET specialists in the U.S.: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database/page/8/
I believe a NET specialist can help put your mind at ease about the best possible course of treatment. Would you consider a consultation with a NET specialist?