Hello,

I've also been diagnosed with FS-DFSP. Thankfully, aside from the tumor growth itself, I haven't experienced any other symptoms to date.

I first noticed a hard mass on my inner thigh when I was around 11 or 12 years old, but it didn't begin growing until late 2022. Just before my 20th birthday, in June 2024, I underwent my first surgery; an excisional biopsy. Two encapsulated tumors were removed, with the largest measuring approximately 6 × 7 × 7 cm. The surgery achieved what was reported as "clear margins," with the excision extending down to the muscle fascia. Before surgery, the tumors protruded from my inner thigh and had become uncomfortable, even making it difficult to walk.

Unfortunately, I experienced a recurrence less than a year later. In December 2025, I underwent a wide local excision. This time, the surgeon removed the underlying muscle fascia as well, but the final margin was only 0.1 cm.

My oncologist has recommended additional surgery to reduce the risk of another recurrence. However, my island does not have the specialist or equipment needed to perform the recommended procedure. At the moment, I am seeking financial assistance from my local government so I can access treatment elsewhere, and I'm also hoping to connect with others through a support group who have had similar experiences.

Thank you for taking the time to read my story. I look forward to connecting with others who understand this journey.