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Colleen Young, Connect Director avatar

Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 1 day ago | Replies (1078)

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Profile picture for juliska32 @juliska32

I recently was diagnosed with leiomyosarcoma in retroperitoneal area. Had tumor removed with positive margins and will be starting chemo. I will be starting Doxorubicin and Dacarbazine, i had a second opinion about replacing Dacarbazine with Trabectin. Curious if anyone else is using either therapy.
Thank you

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Replies to "I recently was diagnosed with leiomyosarcoma in retroperitoneal area. Had tumor removed with positive margins and..."

@juliska32, welcome. I'm tagging a few members like @gemmalt @tjmc @fwaynes @ctflyr who have mention doxorubicin+ trabectedin or trabectedin alone. They may have experiences to share.

Juliska, you may also be interested in this related discussion:
- What are the treatment options for metastatic leiomyosarcoma? https://connect.mayoclinic.org/discussion/metastatic-leiomyosarcoma/