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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @sposieneedshelp, and welcome to the NETs support on Mayo Clinic Connect. I see that @vinnie694 has already responded to your question about monthly injections. We have many members of Connect who have used the monthly injections and have had an improvement in symptoms, and some have also had a reduction in the size of tumors. As @vinnie694 mentioned, he later had PRRT treatment, which, after a year, is also shrinking tumors.

What are your major concerns about beginning the monthly injections?

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Replies to "Hello @sposieneedshelp, and welcome to the NETs support on Mayo Clinic Connect. I see that @vinnie694..."

@hopeful33250 I appreciated hearing from people who have small bowel cancer. My bowel cancer was discovered when a liver biopsy was not found to be metastic bladder cancer!
I do NOT have any symptoms except for some fatigue... so the fact that the side effects may produce the symptoms (that they are supposed to lessen ... but which I am presently NOT experiencing) upsets me.
I do not understand why I could not just go straight to radiation treatments which are believed to shrink the actual ileum tumor.