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Lanreotide eventually becomes less effective, why?
Neuroendocrine Tumors (NETs) | Last Active: 6 hours ago | Replies (11)Comment receiving replies
My CgA, serotonin, insulin, pancreastatin and gastrin levels are all elevated but I can't say I feel that bad. None of these levels are super high but I'm told my levels aren't good.
They say my "neuroendocrine cells" are producing too many hormones. I only have a couple of actual "tumors" with a primary one in my small intestine. I don't know what is functional or where the hormones are coming from. They said that having elevated pancreastatin, insulin and gastrin levels doesn't mean there are cancerous cells in my pancreas and stomach.
I know there are visible "localized" metastatic lesions and one "distant" metastatic lesion. I was told there might be microscopic lesions in my liver and pancreas that can't be seen.
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I didn't mean to imply that Prednisone caused cancer. I'm worried that the immunosuppression from prednisone weakened my immune system making it less effective at finding and destroying early cancer cells. Chronic systemic inflammation probably didn't help the situation. Maybe Prednisone "contributed" but nobody ever knows.
Replies to "@tomrennie My CgA, serotonin, insulin, pancreastatin and gastrin levels are all elevated but I can't say..."
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@dadcue Sorry for misunderstanding, but I think of symptoms as things like vomiting and diarrhea. So you are feeling ok? Functional means that the NETs are producing hormones which usually cause symptoms. Nonfunctional means that the NETs are not producing hormones which means no symptoms. Has anything been biopsied? You are right. Some things may contribute, but we may never know. I do know that you have a lot going on. You can only eat this elephant one bite at a time. Don't be too hard on yourself.