← Return to How to explain your post concussion syndrome to family & friends?

Discussion
Comment receiving replies
Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @nanacate - welcome to Mayo Clinic Connect. I'm glad you became part of this group.

You may find the Help Center https://connect.mayoclinic.org/help-center/ useful, especially the part about How to Use Mayo Clinic Connect. We have many members who are new to online communities when they first join in.

I moved your message to start its own discussion, as I thought it was important and other members would have thoughts to contribute. Tagging a few members who may have some initial thoughts to share about how to effectively explain your post-concussion/TBI symptoms to family and friends, especially amidst grasping for words and trying to explain the extreme fatigue and memory issues.

Please meet @lanulare @kayabbott @lynne123 @jenniferctbisurvivor. @scottrl and @marialara also may have some ideas to contribute.

Would you have tips about what kind of description seems to have "landed" for any family or friends to whom you've explained your symptoms thus far, nanacate?

Jump to this post


Replies to "Hi, @nanacate - welcome to Mayo Clinic Connect. I'm glad you became part of this group...."

Hi, thank you for that warm welcome! So far I do not have any insights or thoughts on how to explain this post-concussion syndrome to others. I sure would love some suggestions! Thank you, Cate

Hi, Lisa, YES, I would most definitely like any and all tips on what kind of descriptions of TBI have helped others understand my new world.
Many thanks, Cate