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Itch with liver pNets

Neuroendocrine Tumors (NETs) | Last Active: 26 minutes ago | Replies (12)

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@billbo I had 13 cycles of CAPTEM which is capecitabine and temozolomide. For me, each cycle was 14 days on and 14 days off. I only took the temozolomide the last five days of a cycle. They reduced the size of my pancreatic tumor and my largest liver lesions about 50%. They also greatly reduced the number of my liver and bone lesions. After the 13 cycles, I have been on the same cycle but only with a reduced amount of capecitabine. I still take it to this day. Everything has remained relatively stable. Let me know, if you have any questions.

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Replies to "@billbo I had 13 cycles of CAPTEM which is capecitabine and temozolomide. For me, each cycle..."

@tomrennie Thx so much for the info. I'm not at the chemo level yet but they will introduce radioactive beads into areas of my liver. Hopefully this will help with the itch!!