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Neuroendocrine Tumors (NETs) | Last Active: 5 hours ago | Replies (3)

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Michaela
It is often hard facing the confusing information about NETs. I needed a second opinion so I found I needed to find a NET specialist who worked with a tumor board to help unravel the situation. My first oncologist did not do a Gallium Dotatate test . I received other tests but not the one that lit up showing the situation more clearly.
Waiting is sometimes rightfully suggested, but I required added peace of mind and I am so grateful I got a reliable second opinion and found additional information and assistance. Hopefully, you find added treatment or reassurance that wait and see is the best for you at this point.

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Replies to "Michaela It is often hard facing the confusing information about NETs. I needed a second opinion..."

@michaela258 I agree with @maeve115. Are any of your doctors a NET specialist? I too get the gallium dotatate contrast in my scans to monitor my NETs. I also had a biopsy to determine how fast my cancer is growing. I believe both are critical in determining your next steps.