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Itch with liver pNets

Neuroendocrine Tumors (NETs) | Last Active: 26 minutes ago | Replies (12)

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@tomrennie What was your treatment? Thx.

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Replies to "@tomrennie What was your treatment? Thx."

@billbo I had 13 cycles of CAPTEM which is capecitabine and temozolomide. For me, each cycle was 14 days on and 14 days off. I only took the temozolomide the last five days of a cycle. They reduced the size of my pancreatic tumor and my largest liver lesions about 50%. They also greatly reduced the number of my liver and bone lesions. After the 13 cycles, I have been on the same cycle but only with a reduced amount of capecitabine. I still take it to this day. Everything has remained relatively stable. Let me know, if you have any questions.