My husband's cancer went to lungs, bones, and lymph nodes from pancreas. First indication for him was severe back pain (bones) so no one even looked for cancer. We just assumed he had pulled a muscle or did something to his back when skiing or kayaking. And when they did look further ... they treated him for lung cancer as that was more likely to have bone mets. And radiation on the bones in his upper spine. Long story short, it was a year before he was correctly diagnosed as having pancreatic cancer. And it was already at stage 4 when he first had the back pain. He did 12 rounds of folfironox, but the chemo was rough towards the end of the 12, so was on a lower maintenance schedule which allowed him to recover some strength. And he did feel better for a while. Had a second opinion at a more specialized cancer hospital, and they concurred with all that was being done. He was next started on gem/abrax which unfortunately did not work for him. His death was about 2.5 years after the back pain so I'm not sure how long he had actually had cancer at that point. I'm not sure if they had correctly diagnosed the back pain that it would have made much difference since it was so widely spread at that point already. We'll never know if delaying treatment for a year made any difference. He was to next start an experimental drug, but unfortunately in his last month things went downhill quickly and he was never able to start that next type of treatment.
Wishing you the best. It is hard to find all the information on this cancer which is why I kept coming back to this website discussion because people here had helpful suggestions. One thing I would suggest, if your husband already isn't doing it, is to start the feet/hand ice treatment during chemo early on. Dan did not and his neuropathy got so extreme that walking became an issue at the end.
One comment on the gem/abrax. Dan immediately lost all his hair. ... including nose hair... and because of the lung involvement he found his nose dripped all the time because there was no nose hair to catch it. Not a huge issue, but something we had not heard of or expected.
Good luck to you and your husband both.