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← Return to MAI drug resistant??
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@becky33 My MAI took a year of the big 3, then still tested positive for MAC so then I went onto inhaled Amakacin, and was negitive in the first month of taking it, Amakacin goes straight to the lungs which is much more successful maby you could discuss Amakacin inhaled with your doctor after a year of the big 3. Let us know how you get on.
Replies to "@becky33 My MAI took a year of the big 3, then still tested positive for MAC..."
@windwalker quite possibly but it probably would have been the big 3 and Amakacin as NJH advise. Its all a case of trial and error, I am quite concerned about going off all the treatments tho, would like to stay on them. See my doc today so will discuss it all then.
Hi Heather, I would be interested in what your doctor had to say today. I hear you about being afraid to go off of the meds. My doctor said I could now do two weeks of tobramycin instead of the 28 days I was on. I did it, but was admittedly apprehensive..
@windwalker Hi Terri, my doc said that my cavities(3) have closed but have left a small scar, my origional nodules have disapppeared but a few new have appeared, she said that people get nodules which come and go without MAC. My sputum from the bronch was negitive for MAC. My scaring/bronchiecatasis is very mild. I have remained on the big 3 as it has taken me along time to clear the MAC(around 2.5 years).
Hi Heather. The cavities closing sounds the best news! Yay!!! Congrats on the negative result on the MAC. Keep taking GOOD care of yourself. This post is exactly what we needed for inspiration. Thanks! - Hugs
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Hello Heather, did you ever ask your doctor if it were possible to have been put on the inhaled Amakacin at the start instead of the big three? Would it have worked back then?