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Segmental colitis-associated diverticular disease

Digestive Health | Last Active: Feb 22, 2019 | Replies (8)

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@hopeful33250

Hello @delicht

Thank you for your kind words. Mayo Connect is a very unique support system where we all learn from each other. As this is a rather rare diagnosis, could you share a little more information. For example, you say that "not everyone agrees on this diagnosis." Was this diagnosis made by a GI specialist or another type of doctor?

Teresa

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Replies to "Hello @delicht Thank you for your kind words. Mayo Connect is a very unique support system..."

I have seen 3 GI specialists to get second (and third) opinions. Other diagnoses have been (1) symptomatic diverticular disease and (2) IBS. My current GI specialist arrived at the SCADD diagnosis after trying out a number of treatments in succession. He was using the treatments to alleviate my symptoms, of course, but also as a diagnostic tool. At that time about 2 1/2 years ago, I was having sudden attacks of severe abdominal pain. The medication that finally worked for me was mesalamine (delzicol), which I continue to take. I also have irregular motility. I take miralax and citrucel for constipation, and other medications for visceral hypersensitivity. I rarely have severe attacks of pain these days, but I do have mild pain - localized on the left - from time to time. And I continue to have irregular motility. I have not been able to figure out which foods - if any - aggravate my symptoms. This has been an ongoing difficulty.
(This probably gives you more information than you wanted or needed!)