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Complicated NET Surgery Needed
Neuroendocrine Tumors (NETs) | Last Active: 9 hours ago | Replies (21)Comment receiving replies
@dadcue
I find your discussion on biologic interesting. How long have you been on the biologic? Is it used to treat a specific type of inflammation, or is it for inflammation in general?
Replies to "@dadcue I find your discussion on biologic interesting. How long have you been on the biologic?..."
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@hopeful33250
It is an IL-6 receptor blocker called Actemra (tocilizumab) which I currently take for several autoimmune conditions. I have a long history of autoimmune disorders and Actemra works well for me.
I was started on Actemra in 2019. There was evidence of my NET in 2020 and they suspect a NET was present long before that. My NET is slow growing.
Is it possible that Actemra is making my NET symptoms better than I should be feeling??
https://pmc.ncbi.nlm.nih.gov/articles/PMC12207837/
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I had carcinoid symptoms in 2019 when I tried to taper off Prednisone. Those symptoms were linked to adrenal insufficiency from long term Prednisone use.